Our Reason for Being

The Story Behind Health Data Safe

The Full Story 

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It started with a simple, recurring question:

Why do patients have so little control over their own health data?

In every conversation — whether with women navigating fertility journeys, patients with long-COVID struggling to access their own test results, or families managing chronic conditions — the same frustration emerged:

“I don’t know where my data is.”

“I don’t know who has access to it.”

“I don’t feel in control.”

This wasn’t just a technical issue. It was a trust crisis — and a democratic one.

Because when individuals don’t own or understand their own health data, they lose more than privacy.

They lose power.

They lose agency.

They lose the ability to make informed decisions about their own bodies, their futures, and their care.

So we asked ourselves:

What if we could flip the system?

What if patients — not platforms, not institutions — were at the centre of health data governance?

What if instead of treating data as a commodity, we treated it as a common good, managed ethically, transparently, and with the people it concerns?

To make this vision real, we created a Swiss-based foundation — rooted in the highest standards of neutrality, transparency, and public interest.

Why Switzerland? Because it is one of the few places in the world where digital trust and data protection can be built into the legal DNA of an organization.

The Health Data Safe Foundation was established to do exactly that:

To design a secure, patient-centric infrastructure for health data governance — independent from commercial interests, accountable to civil society, and aligned with both scientific innovation and ethical imperatives.

Not as a company. Not as a product.

But as a commitment to give people back control over their own health journeys.

One that puts safety, dignity, and equity first.

Because in a world where data is the new currency,

making health data safe is no longer a technical challenge.

It’s a core value.